[open-science] open-science Digest, Vol 17, Issue 7

Tue Mar 23 13:26:03 UTC 2010

Dear Iain,

on the first point, what do you think of the current phrasing
"Respecting the privacy of research subjects should be an integral
part of the decision whether to make the data Open."?

With kind regards,

Daniel

On Tue, Mar 23, 2010 at 2:16 PM, Iain Hrynaszkiewicz
<Iain.Hrynaszkiewicz at biomedcentral.com> wrote:
> Dear all,
>
> Writing from a publisher that is keen to make data available, I'd like
> to point out two sets of guidance relevant to some matters arising from
> the pirate pad discussions on the Panton Principles.
>
> Firstly, the issue of protecting privacy in human subject research. This
> is a major barrier to the sharing of clinical information and I wonder
> if it is being glossed over in the FAQ (13). Some practical guidance on
> openly sharing clinical data was published in the BMJ earlier this year,
> for example:
> http://www.bmj.com/cgi/content/full/340/jan28_1/c181
>
> Secondly, applying PP prior to publication. At BioMed Central, for
> example, we encourage openly sharing data before formal publication [in
> a peer-reviewed journal] and encourage editors to not preclude open
> projects from publication.
> http://www.biomedcentral.com/info/about/duplicatepublication
> So perhaps PP should be applied more uniformly, without the need to
> clarify what 'publication' is.
>
> Best regards,
>
> Iain
>
>
> Iain Hrynaszkiewicz
> Managing Editor
> BioMed Central
> Floor 6, 236 Gray's Inn Road
> London, WC1X 8HL
> T: +44 (0)20 3192 2175
> F: +44 (0)20 3192 2011
> W: www.biomedcentral.com/
>
>
>
>
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> Subject: open-science Digest, Vol 17, Issue 7
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> Today's Topics:
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>   1. FAQs for the Panton Principles and Open Data (Peter Murray-Rust)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Wed, 17 Mar 2010 16:43:47 +0000
> From: Peter Murray-Rust <pm286 at cam.ac.uk>
> Subject: [open-science] FAQs for the Panton Principles and Open Data
> To: open-science <open-science at lists.okfn.org>
> Message-ID:
>        <67fd68331003170943h3ab178d5y64f9086c3af5c597 at mail.gmail.com>
> Content-Type: text/plain; charset="iso-8859-1"
>
> We are talking to a variety of editors and publishers who are keen to
> make
> data "open available" and in many cases mandate it as part of the
> scientific
> process. It's clear that although PP are (I hope) fairly
> self-explanatory
> the implications (licences, buttons, "public domain", community norms,
> etc.)
> are unclear and need careful explanation. One way to do this is through
> FAQs
> and we (Rufus, Cameron, Jonathan + me) are asking for the help of the
> OpenScience list to provide useful communal answers. I'll post the FAQs
> -
> feel welcome to add to them but not TOO many - and ask you to create
> answers. There is a pirate pad at:
>
> http://piratepad.net/LgLRcGLw35
>
> Please use to edit, discuss, hack etc.
>
> We will appreciate rapid feedback as we hope to promote this to
> attendees at
> the AmerChemicalSoc (ACS) next week.
>
>
>
> --
> Peter Murray-Rust
> Reader in Molecular Informatics
> Unilever Centre, Dep. Of Chemistry
> University of Cambridge
> CB2 1EW, UK
> +44-1223-763069
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