[opensourcepharma] Draft Open Ebola Letter

Sat Aug 9 01:54:56 UTC 2014

Els, Mat and Tomasz,

Agree and appreciate.

This initiative could act as a prod for those (read most) 'profit only'
companies to share than protect the information.  Our movement is not only
a potential alternative route to find drugs,
(new or repurposed) but could act as a constant reminder for companies to
rethink on their policies cast in old mould of being profit centric than
patient centric. Idea is to drive this point on a consistent basis which
may build pressure on the companies to disclose information also on drugs,
vaccine which were shelved for whatever reasons but could be re-purposed or
be sold on cheaper rates. We are not only using technology to unify the
efforts and intelligence of diverse researchers across the globe for a
common goal which could bring down the cost and time taken for bringing
medicines to people but also building a new thought process. Sounds too
far-fetched? Hope not!

Regards,
Urmi

On Saturday, August 9, 2014, Tomasz Sablinski <tomasz at transparencyls.com>
wrote:

> Mat,
>
> This looks good; thanks for driving it. I suggest a paragraph - may need
> to be shortebned/ tweaked - and is a bit controversial:
>
> "Knowledge generation in this area should be driven by a public good, not
> by a potential financial gain of any one company. Opening to the public the
> process of knowledge generation will force companies owning certain IP
> rights to contribute to the discussion, while allowing them to preserve
> some financial gain in case of success."
>
>
> Regards,
>
> Tomasz
>
>
>
>
> On Fri, Aug 8, 2014 at 11:56 AM, Matthew Todd <mattoddchem at gmail.com
> <javascript:_e(%7B%7D,'cvml','mattoddchem at gmail.com');>> wrote:
>
>> Further to Els's very interesting suggestion, here's Draft 1.
>>
>>
>> https://docs.google.com/document/d/10qD0-CLlBKp_6COmMUffZp9mp4NwJGlmcwb5Jjt_wDA/edit?usp=sharing
>>
>> Edit away or comment, here or on the document itself. It needs to be
>> short! I think given who it's addressed to it needs to be clearly a
>> recommendation of the idea, rather than a direct appeal for any funding. We
>> can do a lot here in advance of any up-front financial commitment, but
>> which may lead to more substantial efforts later that require dollars.
>>
>> I'd suggest the letter come from a defined group of us, and when
>> published we could ask for wider expressions of support somewhere, from the
>> public.
>>
>> It feels like we'd have more impact with the support of an Ebola
>> researcher - we are addressing the letter to one of the discoverers of the
>> virus, I understand, so maybe that's the way to do it.
>>
>> Els - do you have a venue for this, and a way to alert people to it?
>>
>> Best,
>>
>> M
>>
>>
>>
>> --
>> MATTHEW TODD | Associate Professor
>> School of Chemistry | Faculty of Science
>>
>> THE UNIVERSITY OF SYDNEY
>> Rm 519, F11 | The University of Sydney | NSW | 2006
>> T +61 2 9351 2180  | F +61 2 9351 3329  | M +61 415 274104
>> E matthew.todd at sydney.edu.au
>> <javascript:_e(%7B%7D,'cvml','matthew.todd at sydney.edu.au');> | W
>> http://sydney.edu.au/science/chemistry/research/todd.html | W
>> http://opensourcemalaria.org/
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