[opensourcepharma] Draft Open Ebola Letter

Tomasz Sablinski tomasz at transparencyls.com
Sun Aug 17 21:47:52 UTC 2014


Dear Piero,

It would be great to understand if WHO endorsed the open-source approach to identifying existing drugs with potential in Ebola infection. The only feedback I've seen from the meeting earlier this week was their support for testing non - approved compounds.

Also, the question to all that have been enthusiastically supportive of OSP leading the crowdsourcing effort in the area: are we still committed to this idea? 

Best regards, 
Tomasz

Sent from my iPad

On Aug 8, 2014, at 17:34, "OLLIARO, Piero Luigi" <olliarop at who.int> wrote:

> Dear All
> Please be informed that I’m seeking clarification from those at WHO already looking into open-source options. We have discussed this with Mat and Els, and we agreed that, at this point, it is therefore preferable to postpone sending a letter to others until WHO position is clearer.
> I will keep you posted.
> Best wishes
> Piero
>  
> From: opensourcepharma [mailto:opensourcepharma-bounces at lists.okfn.org] On Behalf Of Tomasz Sablinski
> Sent: 08 August 2014 20:45
> To: Matthew Todd
> Cc: opensourcepharma at lists.okfn.org
> Subject: Re: [opensourcepharma] Draft Open Ebola Letter
>  
> Mat,
>  
> This looks good; thanks for driving it. I suggest a paragraph - may need to be shortebned/ tweaked - and is a bit controversial:
>  
> "Knowledge generation in this area should be driven by a public good, not by a potential financial gain of any one company. Opening to the public the process of knowledge generation will force companies owning certain IP rights to contribute to the discussion, while allowing them to preserve some financial gain in case of success."
>  
> Regards,
> Tomasz
>  
>  
>  
> 
> On Fri, Aug 8, 2014 at 11:56 AM, Matthew Todd <mattoddchem at gmail.com> wrote:
> Further to Els's very interesting suggestion, here's Draft 1. 
> 
> https://docs.google.com/document/d/10qD0-CLlBKp_6COmMUffZp9mp4NwJGlmcwb5Jjt_wDA/edit?usp=sharing
> 
> Edit away or comment, here or on the document itself. It needs to be short! I think given who it's addressed to it needs to be clearly a recommendation of the idea, rather than a direct appeal for any funding. We can do a lot here in advance of any up-front financial commitment, but which may lead to more substantial efforts later that require dollars.
> 
> I'd suggest the letter come from a defined group of us, and when published we could ask for wider expressions of support somewhere, from the public.
> 
> It feels like we'd have more impact with the support of an Ebola researcher - we are addressing the letter to one of the discoverers of the virus, I understand, so maybe that's the way to do it.
>  
> Els - do you have a venue for this, and a way to alert people to it?
> 
> Best,
> 
> M
> 
> 
> 
> --
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> 
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