[open-science] Rare Sharing of Data Leads to Progress on Alzheimer’s (NYTimes)

[Graham Steel]

Peter/All,

The issue here to me that I'd like to see more widely discussed is who actually has access to such 'open data'.

I'm 99.9% certain that I read a comment yesterday, that gaining access to the data from the Alzheimer's dataset requires a log-in/approval. 

There was a similar situaion in June in terms of Pharma data from failed Alzheimer's drug trials being made 'open'. 

Drug Makers Will Share Data From Failed Alzheimer's Trials - WSJ

--

See this thread and you'll see what i'm getting at.


gks
 



Date: Sat, 14 Aug 2010 18:32:47 +0100
Subject: Re: [open-science] Rare Sharing of Data Leads to Progress on Alzheimer’s (NYTimes)
From: pm286 at cam.ac.uk
To: steelgraham at hotmail.com
CC: open-science at lists.okfn.org



On Sat, Aug 14, 2010 at 6:21 PM, Graham Steel <steelgraham at hotmail.com> wrote:






Dear All,

As you may already know, there has been a lot of discussion on the web in the last 24 hours regarding 'Rare Sharing of Data Leads to Progress on Alzheimer’s (NYTimes)':- http://www.nytimes.com/2010/08/13/health/research/13alzheimer.html?emc=eta1


May I propose that this article/discussion is put on the agenda for the next monthly meet up of the OKFN's Working Group on Open Data in Science.

This is an excellent high-profile example of Open Data. Do you have suggestions as to how we can take this forward.

 
There is so much happening in this area now that we have to work out what is the best use of our resources and how to get more people involved. Maybe we shoudl use this and others as picked examples of why Open data works - a sort of prospectus.


Unfortunately not everyone will be convinced and in chemistry it's really tough.

P.

 
-- 
Peter Murray-Rust
Reader in Molecular Informatics
Unilever Centre, Dep. Of Chemistry

University of Cambridge
CB2 1EW, UK
+44-1223-763069
 		 	   		  
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