[open-science] Rare Sharing of Data Leads to Progress on Alzheimer’s (NYTimes)

Sat Aug 14 23:19:16 UTC 2010

On Sat, Aug 14, 2010 at 8:00 PM, Graham Steel <steelgraham at hotmail.com>wrote:

>  Peter/All,
>
> The issue here to me that I'd like to see more widely discussed is who
> actually has access to such 'open data'.
>
> I'm 99.9% certain that I read a comment yesterday, that gaining access to
> the data from the Alzheimer's dataset requires a log-in/approval.
>
> There was a similar situaion in June in terms of Pharma data from failed
> Alzheimer's drug trials being made 'open'.
>
> Drug Makers Will Share Data From Failed Alzheimer's Trials - WSJ<http://online.wsj.com/article/SB10001424052748703627704575298783153884208.html?mod=wsj_share_facebook>
>
> --
>
> See this thread <http://www.als.net/forum/Default.aspx?g=posts&t=48301>and you'll see what i'm getting at.
>

If you mean that the data are not effectively OKD-Open then this is worth
advertising. Logins often creat pseudo-walled gardens where you cannot
extract the whole data. This is very important.

P.

> gks
>
>
>
>
>
> ------------------------------
> Date: Sat, 14 Aug 2010 18:32:47 +0100
> Subject: Re: [open-science] Rare Sharing of Data Leads to Progress on
> Alzheimer’s (NYTimes)
> From: pm286 at cam.ac.uk
> To: steelgraham at hotmail.com
> CC: open-science at lists.okfn.org
>
>
>
>
> On Sat, Aug 14, 2010 at 6:21 PM, Graham Steel <steelgraham at hotmail.com>wrote:
>
>  Dear All,
>
> As you may already know, there has been a lot of discussion on the web in
> the last 24 hours regarding 'Rare Sharing of Data Leads to Progress on
> Alzheimer’s (NYTimes)':-
> http://www.nytimes.com/2010/08/13/health/research/13alzheimer.html?emc=eta1
>
> May I propose that this article/discussion is put on the agenda for the
> next monthly meet up of the OKFN's Working Group on Open Data in Science.
>
>
> This is an excellent high-profile example of Open Data. Do you have
> suggestions as to how we can take this forward.
>
> There is so much happening in this area now that we have to work out what
> is the best use of our resources and how to get more people involved. Maybe
> we shoudl use this and others as picked examples of why Open data works - a
> sort of prospectus.
>
> Unfortunately not everyone will be convinced and in chemistry it's really
> tough.
>
> P.
>
>
>
> --
> Peter Murray-Rust
> Reader in Molecular Informatics
> Unilever Centre, Dep. Of Chemistry
> University of Cambridge
> CB2 1EW, UK
> +44-1223-763069
>

-- 
Peter Murray-Rust
Reader in Molecular Informatics
Unilever Centre, Dep. Of Chemistry
University of Cambridge
CB2 1EW, UK
+44-1223-763069
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