[open-science] openSNP

Paweł Szczęsny ps at pawelszczesny.org
Sat Dec 3 14:38:32 UTC 2011

Hi Jenny,

Personal Genome Project (http://www.personalgenomes.org/ ) is much
older (PGP is five years old, see
http://www.nature.com/msb/journal/v1/n1/full/msb4100040.html ). There
are few other similar projects developed later, for example Genomes
Unzipped. Both PGP and GU use CC0 for data and PGP has phenotypic data
available as well.

Given the licensing, having more of such services like OpenSNP, PGP,
GU or whatever else is actually a good idea. You could present the
idea and gather data from culturally different societes (apparently
none of expert judges had any knowledge in the field - neither PGP or
GU is targeted at people outside of personalized medicine/genomics).


On Sat, Dec 3, 2011 at 2:49 PM, Jenny Molloy <jenny.molloy at okfn.org> wrote:
> Hi All
> I cam across this story on Nature news
> (http://blogs.nature.com/news/2011/12/could_crowd_sourcing_provide_t.html ).
> In an interesting combination of crowd sourcing and open data release,
> openSNP encourages users of personal genome services (23andMe, deCode me
> etc) to openly publish their results alongside phenotypic data that they
> provide to the site. All data is available under a CC0 license, so is
> completely compatible with the Open Knowledge Definition and the Panton
> Principles. Is there anyone on the list who has been genotyped and would
> like to comment on what they think of the idea?
> From the website http://opensnp.org/:
> Why all this?
> openSNP is a non-profit, open-source project that is about sharing genetical
> and phenotypic information. The idea to this project came to Bastian after
> he was genotyped by 23andMe in May and started playing around with his data.
> During his research he became frustrated, because it was not that easy to
> find mode data. He started working on openSNP to fix this. To be clear: This
> project is not about making money, selling data or to quote Google: “We
> don’t wanna be evil”. We are just interested in making science more open and
> accessible.
> Jenny
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