[open-science] Privacy and open research data

[Song, Stephen]

Thanks Mario,

On 8 February 2013 00:04, Jesús M. Siqueiros <jmsiqueiros.bioetica at gmail.com
> wrote:

> Dear Steve;
>
> Misha Agrist has a paper in Nature on the subject of genetic privacy.
> Probably you already know Misha Agrist, I believe you might find his work
> useful and interesting.
>
>
> http://www.nature.com/news/genetic-privacy-needs-a-more-nuanced-approach-1.12363
>

I thought I would share a couple of other resources that may be of interest.

Privacy Tools for Sharing Research Data
http://privacytools.seas.harvard.edu/

Practices and Tools for Microdata Anonymisation from the International
Household Survey Network
http://www.ihsn.org/home/node/118

After reading the likes of Paul Ohm, Latanya Sweeney, Helen Nissenbaum,
Arvind Narayanan and others, I now find myself struck by just how absent
the issue of privacy appears to be in the Open Data world.  It's a bit like
a movement promoting exercise without providing any guidance on how to
exercise safely.

It does make me wonder whether the Open Data/Science community is not
putting itself in a vulnerable position by not addressing privacy in the
context of Open Data advocacy more proactively.

-Steve


>
>
> Cheers
>
> Mario
>
>
> 2013/1/28 Song, Stephen <stephen.song at gmail.com>
>
> Hi all,
>>
>> I am hoping someone might be able to point me to resources related to the
>> understanding and management of privacy in the context of an open science
>> agenda.  Articles such as this recent one in the NYT
>>
>>
>> http://www.nytimes.com/2013/01/18/health/search-of-dna-sequences-reveals-full-identities.html
>>
>> highlight the complexity of effectively managing privacy in a big data
>> world.  Can anyone point me to useful research, resources, guides on this
>> issue?
>>
>> Many thanks in advance... Steve Song
>>
>> On 28 January 2013 07:00, Velichka Dimitrova <velichka.dimitrova at okfn.org
>> > wrote:
>>
>>> Dear all,
>>>
>>> We have published sessions summary, slides and audio from the First Open
>>> Economics Workshop, which took place in Cambridge, UK last December
>>> gathering 40 academic economists, data publishers and funders of economics
>>> research, researchers and practitioners: *
>>> http://blog.okfn.org/2013/01/28/first-open-economics-international-workshop-recap/
>>> *
>>>
>>> The Open Knowledge Foundation realised this workshop together with the
>>> Centre for Intellectual Property and Information Law at Cambridge with the
>>> support of the Alfred P. Sloan Foundation.
>>>
>>> You can also visit the event's webpage<http://openeconomics.net/events/workshop-dec-2012/>and see some
>>> photos of the event on Flickr<http://www.flickr.com/photos/okfn/sets/72157632461581780/>
>>> .
>>>
>>> --
>>> Velichka Dimitrova
>>> Open Economics Project Coordinator
>>> Open Knowledge Foundation
>>> http://okfn.org | http://openeconomics.net
>>>
>>>
>>> _______________________________________________
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>>> open-science at lists.okfn.org
>>> http://lists.okfn.org/mailman/listinfo/open-science
>>> Unsubscribe: http://lists.okfn.org/mailman/options/open-science
>>>
>>>
>>
>>
>> --
>> Steve Song
>> +1 902 529 0046
>> +27 83 482 2088 (SMS only)
>> http://manypossibilities.net
>> http://villagetelco.org
>>
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>>
>>
>
>
> --
> Dr. Jesús M. Siqueiros
> Investigador
> Departamento de Estudios Jurídicos, Éticos y Sociales
> jsiqueiros (at) inmegen . gob . mx
> Tel. 5350 1900 ext. 1158
> INMEGEN
>



-- 
Steve Song
+1 902 529 0046
+27 83 482 2088 (SMS only)
http://manypossibilities.net
http://villagetelco.org
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