[opensourcepharma] Draft Open Ebola Letter

Sat Aug 9 10:33:40 UTC 2014

Dear All,

I think there are 2 somewhat independent threads here.

1/ the letter to WHO to inform them of OSP's approach

2/ the willingness of OSP to do the right thing: engage a broad crowd to
find/expedite cure/prevention

I understand that most of us agreed that #2 is a go. Therefore, I suggests
that #1 is a nice to have, but non essential step. I appreciate the
sensitivity of working with various agencies, etc but often this equals
slowing down the progress, and sometimes a slow death.
So, if we decide that we as OSP will implement crowdsourcing approach,
let's focus our attention on how to do it best. The letter to WHO will or
will not be sent based on Piero's insight but waiting for feedback should
not prevent us from planning the fundraising and securing in-kind support
of few experts form CDC, etc.

In other words, let me be provocative and ask the group: if we hear from
the WHO that they are not certain if opening up the discussion via
crowdsourcing was good idea, would we retreat?

Best regards,

Tomasz

On Fri, Aug 8, 2014 at 5:34 PM, OLLIARO, Piero Luigi <olliarop at who.int>
wrote:

>  Dear All
>
> Please be informed that I’m seeking clarification from those at WHO
> already looking into open-source options. We have discussed this with Mat
> and Els, and we agreed that, at this point, it is therefore preferable to
> postpone sending a letter to others until WHO position is clearer.
>
> I will keep you posted.
>
> Best wishes
>
> Piero
>
>
>
> *From:* opensourcepharma [mailto:opensourcepharma-bounces at lists.okfn.org] *On
> Behalf Of *Tomasz Sablinski
> *Sent:* 08 August 2014 20:45
> *To:* Matthew Todd
> *Cc:* opensourcepharma at lists.okfn.org
> *Subject:* Re: [opensourcepharma] Draft Open Ebola Letter
>
>
>
> Mat,
>
>
>
> This looks good; thanks for driving it. I suggest a paragraph - may need
> to be shortebned/ tweaked - and is a bit controversial:
>
>
>
> "Knowledge generation in this area should be driven by a public good, not
> by a potential financial gain of any one company. Opening to the public the
> process of knowledge generation will force companies owning certain IP
> rights to contribute to the discussion, while allowing them to preserve
> some financial gain in case of success."
>
>
>
> Regards,
>
> Tomasz
>
>
>
>
>
>
>
> On Fri, Aug 8, 2014 at 11:56 AM, Matthew Todd <mattoddchem at gmail.com>
> wrote:
>
> Further to Els's very interesting suggestion, here's Draft 1.
>
>
> https://docs.google.com/document/d/10qD0-CLlBKp_6COmMUffZp9mp4NwJGlmcwb5Jjt_wDA/edit?usp=sharing
>
> Edit away or comment, here or on the document itself. It needs to be
> short! I think given who it's addressed to it needs to be clearly a
> recommendation of the idea, rather than a direct appeal for any funding. We
> can do a lot here in advance of any up-front financial commitment, but
> which may lead to more substantial efforts later that require dollars.
>
> I'd suggest the letter come from a defined group of us, and when published
> we could ask for wider expressions of support somewhere, from the public.
>
> It feels like we'd have more impact with the support of an Ebola
> researcher - we are addressing the letter to one of the discoverers of the
> virus, I understand, so maybe that's the way to do it.
>
>
>
> Els - do you have a venue for this, and a way to alert people to it?
>
> Best,
>
> M
>
>
>
> --
>
> MATTHEW TODD | Associate Professor
> School of Chemistry | Faculty of Science
>
> THE UNIVERSITY OF SYDNEY
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> E matthew.todd at sydney.edu.au | W
> http://sydney.edu.au/science/chemistry/research/todd.html | W
> http://opensourcemalaria.org/
>
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