[MyData & Open Data] distinctions between personal and open

stef s at ctrlc.hu
Wed Jul 3 15:55:54 UTC 2013

On Wed, Jul 03, 2013 at 08:11:36AM +0100, Andy Turner wrote:
> One might want to readily share medical records for epidemiology research, but be less willing to share it with insurers or advertisers even though these might offer us personally beneficial things.

as long as the costs of data leaks is externalised to the victims, it does not
matter if you only release it for "good purposes". not even the US can keep a
secret when 3m contractors have access, not everyone will be a rules-abiding
employee. just imagine an NSA program, that collects medical data from
epidemiology research. and even for other actors, the value of such data
allows for heavy pre-investments which cannot be countered by epidemiology
research institutions. the incentives are badly biased.

pgp: https://www.ctrlc.hu/~stef/stef.gpg
pgp fp: FD52 DABD 5224 7F9C 63C6  3C12 FC97 D29F CA05 57EF
otr fp: https://www.ctrlc.hu/~stef/otr.txt

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