[MyData & Open Data] we have a price: 11KEUR/personal medical data
Lancelot PECQUET (Will Strategy)
lpecquet at willstrategy.com
Sat May 3 06:19:39 UTC 2014
Of course RT != endorsement. I was not suggesting you were vouching for
FT ;-)
Le 03/05/2014 00:34, Rayna a écrit :
>
> I found the idea of such a calculator inline with the discussion.
> Bookmarking It here meant just this, not that I am vouching for some
> fantasmagoric pricing :)
>
> Best,
> Rayna
>
> Le 2 mai 2014 22:29, "Lancelot PECQUET (Will Strategy)"
> <lpecquet at willstrategy.com <mailto:lpecquet at willstrategy.com>> a écrit :
>
> Hi Rayna, Hello everyone,
>
> I find this FT calculator particularly misleading.
>
> First, because it suggests that there is a precise (three decimal
> places...),
> unique way to measure how much personal data is worth , regardless of
> how businesses, governments or others will use it, which is, of
> course, a
> complete nonsense.
>
> Second, because it conveys the idea that personal data has little
> value
> (from $0.007 to $4.99 max for a pregnant banker who owns a house,
> a boat,
> a plane and has extremely poor health condition...).
>
> It suggests for instance that disclosing your heart disease, high
> blood pressure
> or obesity "is only worth $0.26" (whatever that means).
>
> Many people conclude (I have tested this FT calculator on several
> audiences) that,
> "after all, if this piece of information represents only $0.26,
> there is no need to
> worry about protecting it".
>
> Well, as Steph said a few weeks ago if I remember correctly: "once
> the toothpaste
> is out, you cannot put it back".
>
> Best,
>
> Lancelot
>
>
> Le 02/05/2014 18:07, Rayna a écrit :
>> P.S. For those willing to "play", here's FT's questionnaire to
>> evaluate how much your data is worth
>> http://www.ft.com/cms/s/2/927ca86e-d29b-11e2-88ed-00144feab7de.html#axzz30ZhVtbgD
>>
>>
>>
>>
>> 2014-05-01 21:47 GMT+02:00 Mark L <mark.lizar at gmail.com
>> <mailto:mark.lizar at gmail.com>>:
>>
>> Thank you Pierre for these links.
>>
>> - Mark
>>
>> On 1 May 2014, at 12:52, Pierre Chrzanowski
>> <pierre.chrzanowski at gmail.com
>> <mailto:pierre.chrzanowski at gmail.com>> wrote:
>>
>>> Hi,
>>>
>>> There is also datacoup.com <http://datacoup.com/> in the US
>>> which has been covered in the MIT Tech Review [1].
>>>
>>> Also in the MIT Tech Review, I already mentioned here but
>>> this article from Evgeny Morozov [2] is really good. Morozov
>>> argues that "my decision to disclose personal information
>>> (...) will inevitably have implications for other people".
>>> He tells us that personal data is not only an issue of
>>> ownership, freedom and privacy but also of democracy,
>>> justice and inequality.
>>>
>>> @Rayna : do you have evidences / links regarding a campaign
>>> on selling your own personal data in France ?
>>>
>>> Also I would be interested in looking to arguments and
>>> position of midata and mesinfos projects in UK and France
>>> regarding selling your own personal data.
>>>
>>> [1]
>>> http://www.technologyreview.com/news/524621/sell-your-personal-data-for-8-a-month/
>>> [2]
>>> http://www.technologyreview.com/featuredstory/520426/the-real-privacy-problem/
>>>
>>>
>>>
>>> On Thu, May 1, 2014 at 1:19 PM, Rayna <rayna.st at gmail.com
>>> <mailto:rayna.st at gmail.com>> wrote:
>>>
>>> Sally - thanks for the reminder.
>>>
>>> There are more and more companies (such as this one in
>>> France yesprofile.com <http://t.co/eZ0jRVBmWg> ) which
>>> monetize your personal data for you. You can e.g. "rent
>>> your profile to brands"...
>>>
>>> Henning - I'm not sure what additional explanation you
>>> need :) Think of this practice and what impact it will
>>> have on privacy, access to healthcare, etc. and the
>>> social network itself. In addition, there have been
>>> quite a few exchanges on this very list related to
>>> "ownership" of (personal) data.
>>>
>>>
>>> 2014-05-01 13:03 GMT+02:00 Sally Deffor
>>> <sally.deffor at okfn.org <mailto:sally.deffor at okfn.org>>:
>>>
>>> Hi Rayna,
>>> I don't have any examples of specific cases of
>>> campaigning for the monetisation of personal data
>>> like you mentioned, but a couple of weeks ago I
>>> shared this post
>>> <http://www.horizon.ac.uk/News/dutch-student-sells-his-data-for-350-but-at-what-price-privacy?utm_source=twitterfeed&utm_medium=twitter>about
>>> someone putting all his data up for auction. I also
>>> thought it was a worrying trend as your personal
>>> data could inevitably be linked to that of others. I
>>> anticipate some legal wrangles to emerge if such a
>>> legislation were to come into force, without
>>> appropriate protection for linked parties.
>>>
>>> Sally
>>>
>>>
>>> On 1 May 2014 11:50, Henning Kopp
>>> <henning.kopp at uni-ulm.de
>>> <mailto:henning.kopp at uni-ulm.de>> wrote:
>>>
>>> Dear Rayna,
>>> can you please elaborate why you think that this
>>> idea is insane?
>>>
>>> Best regards
>>> Henning Kopp
>>>
>>>
>>> Am 01.05.2014 12 <tel:01.05.2014%2012>:18,
>>> schrieb Rayna:
>>>> Thanks for highlighting this, Stef.
>>>>
>>>> There's a very worrisome trend advocated/lobbyied for by some prominent
>>>> people here in France about implementing some sort of "copyright-like"
>>>> legislation for personal data. In other words, the baseline is to have a
>>>> copyright framework that views personal data as your property --
>>>> possessions that you could, naturally (sic), sell and make money out of.
>>>>
>>>> The idea sounds insane to me (insane as in lack of basic intellectual
>>>> sanity) but I am under the impression such a vision starts spreading. I'd
>>>> be curious to know whether you've seen similar discussions/trends in your
>>>> respective countries and/or on a more transnational level. After all, the
>>>> EU Data Protection directive is the most deeply plagued one by all sorts of
>>>> lobbyies in the history of the EU...
>>>>
>>>> Thanks,
>>>> Rayna
>>>>
>>>>
>>>>
>>>> 2014-05-01 11:52 GMT+02:00 stef<s at ctrlc.hu> <mailto:s at ctrlc.hu>:
>>>>
>>>>>> In this petition to Strasbourg, Ms H. complained that the MADEKKI, by
>>>>>> collecting her personal medical data, had violated her rights under
>>>>> Article 8
>>>>>> (right to respect for private and family life). The Court found that her
>>>>>> rights had indeed been violated and awarded her 11,000 euros by way of
>>>>> “just
>>>>>> satisfaction”, or non-pecuniary damages.
>>>>> http://ukhumanrightsblog.com/2014/04/30/disclosure-of-medical-records-breached-patients-human-rights-strasbourg/
>>>>>
>>>>> --
>>>>> otr fp:https://www.ctrlc.hu/~stef/otr.txt <https://www.ctrlc.hu/%7Estef/otr.txt>
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>>>>
>>>>
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>>>
>>>
>>> --
>>> *Sally Deffor
>>> Open Data & Privacy Project Coordinator |
>>> skype:deffor.selase | @SDeffor | +44 (0)7774 734206
>>> <tel:%2B44%20%280%297774%20734206>
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>>>
>>> http://me.hatewasabi.info/
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>>>
>>>
>>> --
>>> *Pierre Chrzanowski*
>>> *Expert Open Data*
>>>
>>> Mail : pierre.chrzanowski at gmail.com
>>> <mailto:pierre.chrzanowski at gmail.com>
>>> Skype : pierre.chrzanowski | Twitter : @pzwsk
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>>
>>
>>
>>
>> --
>> "Change l'ordre du monde plutôt que tes désirs."
>>
>> http://me.hatewasabi.info/
>>
>>
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