[open-science] Fwd: An Open Call: I have a brain cancer.

Jonathan Gray jonathan.gray at okfn.org
Wed Sep 12 05:56:39 UTC 2012

-----Original Message-----

An Open Call: I have a brain cancer.

"A brain cancer. Some very personal Open Data. An opportunity."


Salvatore Iocanesi, has put out an open call for all to grab the information
about his disease, and create a video, an artwork, a map, a text, a poem, a
game, or try to find a solution for his health problem.


Yesterday I went to get my digital medical records: I have to show them to
many doctors.

Sadly they were in a closed, proprietary format and, thus, I could not open
them using my computer, or send them in this format to all the people who
could have saved my life.

I cracked them.

I opened them and converted the contents into open formats, so that I could
share them with everyone.

Just today I have been able to share the data about my health condition
(about my brain cancer) with 3 doctors.

2 of them already replied.

I have been able to do it because the data used open, accessible
formats: they have been able to open the files using their computers, their
tablets. They have been able to reply from home, on sunday.

I will progressively publish all the replies I will receive, using open
formats, so that anyone with my same disease will be able to benefit from
the solutions I will find.

This is a CURE. This is my OPEN SOURCE CURE.

This is an open invitation to take part in the CURE.

CURE, in different cultures, means different things.

There are cures for the body, for spirit, for communication.

Grab the information about my disease, if you want, and give me a CURE:
create a video, an artwork, a map, a text, a poem, a game, or try to find a
solution for my health problem.

Artists, designers, hackers, scientists, doctors, photographers,
videomakers, musicians, writers. Anyone can give me a CURE.

Create your CURE using the content which you find in the DATI/DATA section
here on this site, and send it to info at artisopensource.net.

All CURES will be displayed here.

Jonathan Gray

Head of Community
The Open Knowledge Foundation


More information about the open-science mailing list