[MyData & Open Data] we have a price: 11KEUR/personal medical data

Thu May 1 10:18:32 UTC 2014

Thanks for highlighting this, Stef.

There's a very worrisome trend advocated/lobbyied for by some prominent
people here in France about implementing some sort of "copyright-like"
legislation for personal data. In other words, the baseline is to have a
copyright framework that views personal data as your property --
possessions that you could, naturally (sic), sell and make money out of.

The idea sounds insane to me (insane as in lack of basic intellectual
sanity) but I am under the impression such a vision starts spreading. I'd
be curious to know whether you've seen similar discussions/trends in your
respective countries and/or on a more transnational level. After all, the
EU Data Protection directive is the most deeply plagued one by all sorts of
lobbyies in the history of the EU...

Thanks,
Rayna

2014-05-01 11:52 GMT+02:00 stef <s at ctrlc.hu>:

> > In this petition to Strasbourg, Ms H. complained that the MADEKKI, by
> > collecting her personal medical data, had violated her rights under
> Article 8
> > (right to respect for private and family life). The Court found that her
> > rights had indeed been violated and awarded her 11,000 euros by way of
> “just
> > satisfaction”, or non-pecuniary damages.
>
>
> http://ukhumanrightsblog.com/2014/04/30/disclosure-of-medical-records-breached-patients-human-rights-strasbourg/
>
> --
> otr fp: https://www.ctrlc.hu/~stef/otr.txt
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