[MyData & Open Data] we have a price: 11KEUR/personal medical data

Thu May 1 10:50:20 UTC 2014

Dear Rayna,
can you please elaborate why you think that this idea is insane?

Best regards
Henning Kopp

Am 01.05.2014 12:18, schrieb Rayna:
> Thanks for highlighting this, Stef.
>
> There's a very worrisome trend advocated/lobbyied for by some prominent
> people here in France about implementing some sort of "copyright-like"
> legislation for personal data. In other words, the baseline is to have a
> copyright framework that views personal data as your property --
> possessions that you could, naturally (sic), sell and make money out of.
>
> The idea sounds insane to me (insane as in lack of basic intellectual
> sanity) but I am under the impression such a vision starts spreading. I'd
> be curious to know whether you've seen similar discussions/trends in your
> respective countries and/or on a more transnational level. After all, the
> EU Data Protection directive is the most deeply plagued one by all sorts of
> lobbyies in the history of the EU...
>
> Thanks,
> Rayna
>
>
>
> 2014-05-01 11:52 GMT+02:00 stef <s at ctrlc.hu>:
>
>>> In this petition to Strasbourg, Ms H. complained that the MADEKKI, by
>>> collecting her personal medical data, had violated her rights under
>> Article 8
>>> (right to respect for private and family life). The Court found that her
>>> rights had indeed been violated and awarded her 11,000 euros by way of
>> "just
>>> satisfaction", or non-pecuniary damages.
>>
>> http://ukhumanrightsblog.com/2014/04/30/disclosure-of-medical-records-breached-patients-human-rights-strasbourg/
>>
>> --
>> otr fp: https://www.ctrlc.hu/~stef/otr.txt
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>>
>
>
>
>
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