[MyData & Open Data] we have a price: 11KEUR/personal medical data

Thu May 1 11:03:08 UTC 2014

Hi Rayna,
I don't have any examples of specific cases of campaigning for the
monetisation of personal data like you mentioned, but a couple of weeks ago
I shared this post
<http://www.horizon.ac.uk/News/dutch-student-sells-his-data-for-350-but-at-what-price-privacy?utm_source=twitterfeed&utm_medium=twitter>about
someone putting all his data up for auction. I also thought it was a
worrying trend as your personal data could inevitably be linked to that of
others. I anticipate some legal wrangles to emerge if such a legislation
were to come into force, without appropriate protection for linked parties.

Sally

On 1 May 2014 11:50, Henning Kopp <henning.kopp at uni-ulm.de> wrote:

>  Dear Rayna,
> can you please elaborate why you think that this idea is insane?
>
> Best regards
> Henning Kopp
>
>
> Am 01.05.2014 12:18, schrieb Rayna:
>
> Thanks for highlighting this, Stef.
>
> There's a very worrisome trend advocated/lobbyied for by some prominent
> people here in France about implementing some sort of "copyright-like"
> legislation for personal data. In other words, the baseline is to have a
> copyright framework that views personal data as your property --
> possessions that you could, naturally (sic), sell and make money out of.
>
> The idea sounds insane to me (insane as in lack of basic intellectual
> sanity) but I am under the impression such a vision starts spreading. I'd
> be curious to know whether you've seen similar discussions/trends in your
> respective countries and/or on a more transnational level. After all, the
> EU Data Protection directive is the most deeply plagued one by all sorts of
> lobbyies in the history of the EU...
>
> Thanks,
> Rayna
>
>
>
> 2014-05-01 11:52 GMT+02:00 stef <s at ctrlc.hu> <s at ctrlc.hu>:
>
>
>  In this petition to Strasbourg, Ms H. complained that the MADEKKI, by
> collecting her personal medical data, had violated her rights under
>
>  Article 8
>
>  (right to respect for private and family life). The Court found that her
> rights had indeed been violated and awarded her 11,000 euros by way of
>
>  “just
>
>  satisfaction”, or non-pecuniary damages.
>
>  http://ukhumanrightsblog.com/2014/04/30/disclosure-of-medical-records-breached-patients-human-rights-strasbourg/
>
> --
> otr fp: https://www.ctrlc.hu/~stef/otr.txt
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-- 

*Sally DefforOpen Data & Privacy Project Coordinator | skype:deffor.selase
| @SDeffor | +44 (0)7774 734206 The **Open Knowledge
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