[MyData & Open Data] we have a price: 11KEUR/personal medical data

Thu May 1 11:19:17 UTC 2014

Sally - thanks for the reminder.

There are more and more companies (such as this one in France
yesprofile.com<http://t.co/eZ0jRVBmWg>) which monetize your personal
data for you. You can e.g. "rent your
profile to brands"...

Henning - I'm not sure what additional explanation you need :) Think of
this practice and what impact it will have on privacy, access to
healthcare, etc. and the social network itself. In addition, there have
been quite a few exchanges on this very list related to "ownership" of
(personal) data.

2014-05-01 13:03 GMT+02:00 Sally Deffor <sally.deffor at okfn.org>:

> Hi Rayna,
> I don't have any examples of specific cases of campaigning for the
> monetisation of personal data like you mentioned, but a couple of weeks ago
> I shared this post
> <http://www.horizon.ac.uk/News/dutch-student-sells-his-data-for-350-but-at-what-price-privacy?utm_source=twitterfeed&utm_medium=twitter>about
> someone putting all his data up for auction. I also thought it was a
> worrying trend as your personal data could inevitably be linked to that of
> others. I anticipate some legal wrangles to emerge if such a legislation
> were to come into force, without appropriate protection for linked parties.
>
> Sally
>
>
> On 1 May 2014 11:50, Henning Kopp <henning.kopp at uni-ulm.de> wrote:
>
>>  Dear Rayna,
>> can you please elaborate why you think that this idea is insane?
>>
>> Best regards
>> Henning Kopp
>>
>>
>> Am 01.05.2014 12:18, schrieb Rayna:
>>
>> Thanks for highlighting this, Stef.
>>
>> There's a very worrisome trend advocated/lobbyied for by some prominent
>> people here in France about implementing some sort of "copyright-like"
>> legislation for personal data. In other words, the baseline is to have a
>> copyright framework that views personal data as your property --
>> possessions that you could, naturally (sic), sell and make money out of.
>>
>> The idea sounds insane to me (insane as in lack of basic intellectual
>> sanity) but I am under the impression such a vision starts spreading. I'd
>> be curious to know whether you've seen similar discussions/trends in your
>> respective countries and/or on a more transnational level. After all, the
>> EU Data Protection directive is the most deeply plagued one by all sorts of
>> lobbyies in the history of the EU...
>>
>> Thanks,
>> Rayna
>>
>>
>>
>> 2014-05-01 11:52 GMT+02:00 stef <s at ctrlc.hu> <s at ctrlc.hu>:
>>
>>
>>  In this petition to Strasbourg, Ms H. complained that the MADEKKI, by
>> collecting her personal medical data, had violated her rights under
>>
>>  Article 8
>>
>>  (right to respect for private and family life). The Court found that her
>> rights had indeed been violated and awarded her 11,000 euros by way of
>>
>>  “just
>>
>>  satisfaction”, or non-pecuniary damages.
>>
>>  http://ukhumanrightsblog.com/2014/04/30/disclosure-of-medical-records-breached-patients-human-rights-strasbourg/
>>
>> --
>> otr fp: https://www.ctrlc.hu/~stef/otr.txt
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>
>
> --
>
>
> *Sally DefforOpen Data & Privacy Project Coordinator | skype:deffor.selase
> | @SDeffor | +44 (0)7774 734206 <%2B44%20%280%297774%20734206> The **Open
> Knowledge Foundation* <http://okfn.org/>
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